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Rank: Member
Groups: Registered
Joined: 12/29/2011
Posts: 12
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Hello everyone. I have been diagnosed with ra for over 3 years now and I am on methotrexate, prednisolone and planquill. I also take dihydrocodeine for pain and amitrypceline, alendronic acid,buccastem, omeprazole, calcichew and frolic acid. Quite a mixture but I think everyone is about the same. I often take a terrible itch all over my body and I wonder if anyone else experiences this. There appears to be no pattern to when it happens but is very tiresome particularly when I lose sleep with it.
I was medically retired from the job I loved just about a year now but have learned to accept that you can make a new life and work around your ra!
I do find this site very supporting and am so glad I joined.
Moira
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Rank: Advanced Member  Groups: Registered
Joined: 2/18/2010 Posts: 1,098 Location: farningham kent
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Hello Moira
Welcome to the forum, you will always have support and understanding as you can see, we all know what each other is going through at times and that can help so much.
I have suffered from itching and had it really bad when I was on infliximab and it was only because I found out on here that antihistamine can be of great benefit that I spoke with my GP, I now take it whenever it rears its head and always seems to take it away. I hope it does the trick for you as well.
Best wishes, and keep us posted, Julia x
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Rank: Advanced Member  Groups: Registered
Joined: 6/18/2010 Posts: 351 Location: Herne Bay Kent
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Hi Moira
A warm welcome to this forum which you will find is an invaluable source of encouragement advice and fun. There isn't any question you can't ask and I have found it an invaluable source of support.
I have been diagnosed 5 years, am 57 and am currently on Methotrexate and Enbrel along with Lanzaprazole folic acid and pain kilers as and when. I have not really had a problem with itching and I hope you manage to get relief from it soon.
Looking forward to hearing more from you.
Best Wishes
Sue
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Rank: Advanced Member  Groups: Registered
Joined: 3/28/2011 Posts: 956 Location: North Preston
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Hello Moira
Welcome to the forum. It is good to hear from you. I hope you continue to find the information, sharing of experiences and new friends very beneficial.
Sheila x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Hi Moira,
Welcome to the forum but sorry you have RA.
I am 62 and have had RA for 11 years.
Married to Ian and have a 22 year old daughter.
Looking forward to getting to know you.
Love Doreen xx
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Rank: Member
Groups: Registered
Joined: 12/29/2011
Posts: 12
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Thanks very much for the replies. Much appreciated. I am 52 with 2 boys 31 and nearly 30, a daughter 25 and 2 little precious granddaughters one 6 and the other will be 1 next saturday. Looking forward to getting to know you all through the good and bad days!!!!!!
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Rank: Advanced Member  Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
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Hello Moira
A welcome from me. Sorry you have RA but glad you have found the forum. You will find in invaluable.
I am Rose diagnosed 2008, been on DMARDS to no avail and also failed on 1 TNF Humira, and half way
through the expectation of betterment after having my first 2 infusions of Rituximab. Not working as
yet I am afraid to say. I am 57 and married to Mike 2 children 32 and 29 and 1 grand daughter aged 7.
Look forward to getting to know you
Rose
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Rank: Member
Groups: Registered
Joined: 12/29/2011
Posts: 12
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Sorry to hearyou have not had much luck with the medication, it certainly takes time!
I was admitted to hospital last year after taking a bad reaction to sulphasilene which caused me to lose quite a bit of blood. I had to get a transfusion as my hamoglobin count was down at 6!fortunately I recovered well and that drug was stopped! It is true that what works for one does not so for the other!
I find the steroid injections marvellous when the joints are very painful!
When work starts having a real impact on your quality of life it is time to consider options. I tried my best to get back but i was. Just constantly exhausted!
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Rank: Advanced Member  Groups: Registered
Joined: 9/3/2011 Posts: 717 Location: Torbay
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Hello Moiraod
I am Naomi and I was diagnosed in August last year. I get itching too. I get it on my hands when the joints are inflamed there but it usually goes away within an hour or two and is not too bad. However I get hives sometimes too on my legs below the knee and the itching there is absolutely maddening. It is accompanied by a pinkish orange rash and swelling. I want to claw at my skin when this happens. Luckily (touch wood) this only lasts for a few minutes as otherwise I would go bonkers!
Best wishes from Naomi.
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